Quite the conundrum

I was alerted by an administrator on a private site on Facebook that I am a part of that pictures of our Heart warriors were being copied and stolen.

Then…the sickos who were taking those pictures were setting up fake fundraising sites and were making money off of the pictures of some of the hardest times in our lives as heart parents.

I alerted all of my friends on FB about what was going on and asked everyone to take down pics of Evan post heart surgery.

I haven’t had the opportunity to check and track every picture I posted, but I have to err on the side of caution.

The last thing I want is someone profiting from the darkest moment in our lives.  I also don’t want people to think that I share Evan’s story for money. That’s not what this blog is about, what his Facebook site is about, what any of this is about.

The sole purpose I share Evan’s story is to raise awareness about congenital heart defects and to show the world that there is absolutely hope out there…in times where it feels like there is none.

And, my boy has done his job.  He really has.

I received calls, text messages, FB messages to stop blogging about him, shut down his FB site, and make a private site where only friends and family can follow his progress.

I considered it for about a second.

Then I realized…I just can’t.

His life has touched too many lives.  In his short time on this earth, he has made it a better place.

I know he has made a difference.  His testimony is one to be shouted from the roof tops – and he’s only 7 months old.

I can only imagine what he’ll do with his life as he grows…defies the odds…and becomes the man God intended him to be.

I will absolutely be more careful in how I share pictures.  I’m starting to watermark pictures so others – friends and family – are able to share them.

I’ll be able to track where the pictures are going – so I’ll know if a fake site is being set up using his pictures.

It’s going to be a lot more work for me…but too many are praying for my boy…and he’s been the answered prayer for too many.

I don’t want people to think I’m exploiting my boy…he’s not Honey Boo Boo.

He is a source of inspiration and a light of hope….just like the many blogs I read about other children defying the odds of congenital heart disease.

His life has more meaning and more purpose than I ever thought possible…and I only hope people see my sharing our ups and downs of this journey as a way to continue this charge we’ve been given as a family.

Silly…I know…to think my 7 month old baby could mean so much to so many…

Silly…to think…that a baby could change the world…

Silly…but he’s changed mine.



  1. Wow. That is horrible that people would use your pictures in such a deceitful way. I’m sorry you have more work, but am so glad you are going to continue to share his story and touch so many lives.

  2. Something I’ve learned is to put the watermark over a face. It’s much harder to crop out /edit if the watermark is over a face.