Wednesday

After a 2 day stay in the ICU…

After oxygen levels dropping to dangerous levels – so scary the “A” team rushed to our room aka the Emergency Response Team…

After playing with feeds..

After adding another medication to his already hefty regimen…

After another sleepless night…

After looking into those sad, helpless eyes…

We have a date for an interventional catheter.

Evan’s heart defect doesn’t allow blood flow to get to his lungs adequately.  That’s why his oxygen levels have been lower than normal.

We were told when I was still carrying him that he may need to have surgery to add something called a “BT Shunt” to increase blood flow to the lungs.

After a good look at his heart again, the interventionlist saw that a fetal feature in his heart was still present.  In utero, the baby has a structure called a PDA that allows flow to the lungs.  When a baby is born, the PDA closes and the heart moves blood to the lungs through a valve.

In Evan, his PDA hasn’t closed completely.  There’s a teeny tiny hole where his was and the catheter team feel that they can go in and open up his PDA to allow more blood flow to his lungs.

So, if all goes well and the catheter is a success, Evan can avoid surgery for now.

It’s still invasive.

He’ll still be put under general anesthesia.

He’ll still have to be intubated (they’ll stick a tube in his throat to breathe for him).

He’ll still be taken out of my arms for hours while doctors perform a risky procedure.

While I wait…

While I cry…

While I pray…

So, let’s pray friends.

Pray for a successful catheter.

Pray that they are able to open up the PDA so we do not have to have surgery now.

Pray he does well under anesthesia.

Pray he stays free from infection.

Pray he has a swift and successful recovery – especially after extubation (removing the breathing tube).

Pray that it works and his lungs get the blood flow that he needs.

His catheter is scheduled for Wednesday – tentatively.  If he has a bad day or a bad night, the team may move up the date to tomorrow.

Pray.

Pray.

Pray.

 

 

 

Comments

  1. Praying!

  2. I am praying for Evan and your family as well as the other Heart Warriors. I am in awe of the strength that you have had throughout the past 6+ weeks. I can only imagine how hard this may be for you and your family. I pray for you all every night. God Bless.

  3. Praying!

  4. Praying.

  5. You have a lot of us praying for your little man. I will also be praying for your family as you go through one of the hardest things you will ever experience…handing your little baby over to a surgeon.